OCT 12, 2017:

Joshua Denny, MD MS, and Consuelo H. Wilkins, MD MSCI present the Flexner Discovery Lecture on “Propelling Precision Medicine and its Promise of Health Equity” at VUMC.  Here you can see additional information and a link to watch the lecture

OCT 15, 2017:

Call for Papers in Social Science and Medicine: Special Issue: Genomics at the frontiers of social and behavioral science research: theory, discovery, and translation

This special issue of Social Science & Medicine solicits papers focusing on the application of social science theory to advance the study of genomic translation. With the advent of precision medicine and the integration of genomic discoveries into medical care comes the need for optimal translation of such discoveries within both clinical and community contexts. Optimal translation involves consideration of a broad swathe of psychosocial factors. These include, the social determinants that patients and providers bring to the clinical encounter, the interpersonal mechanisms that underpin patient-provider interactions, the complexities of integrating genomic, contextual and neurobiological dataand the challenges of broader diffusion of information beyond the clinical setting to families and communities. With such complexity comes the need to take an organized approach, grounded in theoretical frameworks that guide how social and behavioral processes influence and are influenced by genomic health information. We seek to publish high impact research that considers the social contextual factors that influence the translation of genomic information through the lens of social science theory. Invited topics include, for example: frameworks that consider integration of genomic, contextual and neurological/biological dataapplication of health behavior theory to decisions to access and use genomic information; health communication around genomics in clinical and community settings; and diffusion of innovation in putting genomics to use. Original research articles (both empirical and theoretical), reviews, position papers and commentaries that fit within the call are encouraged.

Submission instructions:

The submission and review process will occur in two stages.  First, authors should submit an extended abstract of 800 words by October 15, 2017, along with a cover letter explaining the unique features of the study, review, or commentary and how the contribution fits within the call for papers to GenomicFrontiers.SSM@nih.gov.

OCT 20, 2017:

Public Comments / Feedback Sought on NIH Model for Genomic Summary Results Access:

The NIH has released a call for public comments on the proposed new model for access to genomic summary results through NIH-designated data repositories. The public comment period for this proposed update will be for 30 days, with responses due on October 20th.

Here you can read the Guide Notice, access the public comment website, and read the blog post from Eric Greene and Carrie Wolinetz about the news.

 

Community Health Workers (CHWs) are an important stakeholder group in patient-centered outcomes research (PCOR). The core role of many CHWs as an advocate for the patient and for their community must be recognized. It has also been documented that there is a need for standardized curriculum and materials in CHW training, and also a lack of coordinated efforts by agencies using CHWs to establish training programs. This project aims include to develop and implement a structured research training program in PCOR for CHWs, while strengthening the multi-stakeholder group in developing a structured training and state certification program for CHWs. Building on this experience, University of Miami and their stakeholder partners FL CHW Coalition Inc and Health Council of South FL, are developing a PCOR elective module that can be used by CHWs toward their state certification. Through the six regional CHW groups and increasing statewide organizational capacity for CHW utilization, the project is using this program to train 100 Florida CHWs in PCOR by September 2017. A toolkit will then be developed that can be used by groups in other states to develop a similarly structured program, in English, designed for a group of maximum 20 participants per session as to be participatory, with a mix of adult learning strategies using lecturettes, case studies, short videos, role plays and small group work. With the toolkit, this project will develop a cadre of PCOR trained CHWs and facilitate the meaningful involvement of this important stakeholder group in PCOR nationally.

http://www.pcori.org/research-results/2015/statewide-partnership-training-floridas-community-health-workers-patient

http://med.miami.edu/news/miller-school-state-and-regional-partners-receive-award-to-train-commu

http://miamictsi.org/news/2016/03/training-in-patient-centered-outcomes-research-set-for-april-and-may

To learn more, visit the University of Miami CTSI CECD Program website, and the Patient Centered Outcomes Research Institute (PCORI) website.